Wasit The Clown Doctors, The Fact My Drain Tubes Came Out, The Happy Gas or The Morphine. No one knows but we are all happy about this one.

Mia Says
"Thankyou to everyone for leaving me messages on the website and all my beautiful balloons. And thankyou to Katy for reading me a bed time story. I have enjoyed alll my Skype talking. Do you like my hair??? Mum just did it."

Small Steps

Mia is asleep at the minute and totally zonked out. Managed to take 4 steps out of bed and to the chair where she has remained all day. She seems comfortable when still but in alot of pain when moving.

A Message From Mia Herself

Hello everyone out there. Daddy and i have just read all the beautiful messages that you have all been writing on here and facebook. It is now 9pm Sunday night and my operation was on Friday. I would like to also thank everone for the beautiful presents and things. The nurses here are very nice and i am a little bit sore.
Just got to have my first taste of "Warfarin" which helps to thin my blood. It tasted disgusting. Dad and i are now working out the best way of taking it moving forward considering it is a permanent part of my life now. We are thinking chocolate topping or something else yummy.
Here i am with my friend Tam, my beautiful teddy and balloon from Marg and Jane, and my beautiful handcrafted quilt.

Mia had a hard night last night, issues with pain mainly and finding it very hard to cough. Today we will have the pain team and physiotherapists to help out. Still waiting for the Drs to come around thismorning. She is a little happier when awake but still thirsty. Nothing to eat yet except the nose up of a chocolate frog! She has just had a lovely leg massage from Mum and looks comfortable. Thanks for all the messages.

With the possibility of sounding rude, who is KB from ACT?? We are wracking our brains!

XXX

Hey All,
Breahting tube out, nasogastric tube out, norad (for those interested) and midaz all gone - little bit of morphine. Still has central line. Still miserable and frustrated that she can't drink, only allowed 27ml per hour! Not happy Jan. Hopefully up to the ward later today!

Tube Out

Mia's breathing tube came out at a quater past midnight, a lot later than we expected, but she is doing well. We have snuck back tot eh hotel to get some Zzzzz before she realises we have gone. She is very grumpy and all she wants is a drink - which of course is not allowed! Will update again in the morning

XX

In ICU and all is going to plan. Long night ahead.

FINISHED!

We have had a call from the surgeon that Mia's operation is finished and he is very happy. Still to see her yet, but we wanted to let you all know that she is doing well. Thanks for all your messages and support.
XX

Here we go.......

Mia is in Surgery. She was great this morning and quite relaxed, especially after her pre-med! Doctor 'Tigger' has gone in with her to keep an eye on everything and now we just wait..... for a long time....... update in 5-6 hours people
XXXX

PS ***Please remember to leave your name at the bottom of the comments if you have not signed in so we know who you are!!
i.e the first comment on this post
cheers

NEW SURGERY DATE

Provisional new date for surgery, next Friday, 16th April. Once again fingers and toes crossed for no cancellations, onviously not everyone complied last time!!

SURGERY CANCELLED

Hey all, just got news that Mia's surgery has been cancelled until sometime late next week - will keep you all informed!

Off to Hospital

Mia went to pre-admission clinic last week and was not at all phased by anything she had to do or have done to her, she was a STAR! She had losts of tests and interviews with doctors etc.. and did a fantastic job.

Surgery is Wednesday 7th April unless cancelled due to emergencies.

We had a great time at Eildon on the weekend and the easter bunny came!

Heartkids Christmas Party

We went to the Zoo today to celebrate Christmas with Heartkids Victoria. For all of us, Christmas is a time to remember what you have been blessed with in life. It makes me realise how lucky we are to have our precious little girl (and boy too!) and how special she is. We remember the heartache, the pain, the heart angels we got to know and have lost. We reconnected with friends who helped us and shared the pain, and joy of watching theirs and our child come through some pretty hard times.
Mia was thrilled to see Santa and he gave her a talking FIFI doll which she just loves!
The whole Zoo things was a bit lost on Theo, will have to take him back when he is a bit older!
Please keep Mia and all her heartkid friends in your thoughts and prayers!

Mia went to Tesselarrs Tulip Festival with her friends Cooper and Chelsea. They had a great time tip-toing through the tulips and playing in the fairy garden. Mia thinks she saw a fairy in a flower!

Theo just loves his baths. He has two teeth and is crawling all over the place. Today he tipped out Molly's water onto the kitchen floor, and also worked out how to get the lid off his talc and puffed it in his face!

Look at Theo, proud as punch to be sitting up playing with his toys! He loves this little telephone, and the spinning tops too!

Mia is desparate for the weather to get warm so she can wear some of the lovely summer clothes she got for her birthday! In the interim, leggings and long tops to be worn underneath!

ALREADY THREE!

Can you believe our little girl is THREE tomorrow! And doesn't she look beautiful. She is growing up so fast and I don't know where the years have gone.

Heart Check

Once again, Mia has passed her heart check with flying colours! Her cardiologist said her ultrasound pictures looked great. Still looking at 4 or 4.5 for the next op, the limiting factor being we need to beef her up.
Other than that, the terrible twos have appeared just before the third birthday and have come with avengence! Interesting time in our house right now.
Theo is georgous, developing beautifully. Never stops babbling, mum-mum dad-dad and nan-nan. Squeels with laughter when his sister giggles with him.

Does Dorothy like Sweet Potato?

This is Mia, or is it Dorothy the Dinosaur? Who could tell. We had great fun at the Wiggles concert last week and it has given Mia a new love of the fab four, recently forgotten and replaced by Hi5 (much to my distress). Mia also loves ballerinas, dancing, dressing up as a fairy (or is it a ballerina?) and going to music and movement classes. She is very cute.

Theo has discovered the joys of smearing himself with food, which ENSURES a bath at the end of the meal, which he loves. Here, sweet potato and pumpkin, strategically aimed at the mouth (but not always successfully!!)

Mia and Theo have a great time toghether playing on the floor now! Theo is rolling all over the place and gets annoyed if Mia is in his way!

Madam, next to the piano. I have bought a pre-reader piano lesson book which is really as much to teach me HOW to teach her to play, as it is to teach her to play!!!! (did that make sense?) We had our first music class yesterday and she loved it.