Hi All,
Sorry I havn't blogged for a while, just so busy around the house! I feel like I am hooked up to Mia and her feeding pump at least 7 hours a day and she is still vomiting most of her feeds, so then cleaning her and myself up after that!
It is really good to be at home though. Mia is such a happy baby and giving Richard and myself so much joy and love. It is a really hard road at the moment, but we wouldn't swap her for the world! We knew things were going to be hard. Still just trying to fatten her up for her next operation, likely in February. Last week she put on 110g, so still on the increase although slowly. We are hoping to push the big 4kg this week! (only 60g to go......)
Mia's favorite things are Daddy singing James Blunt's "Beautiful", staring at her purple elephant, and sticking her tounge out at anyone she can. I think she learnt that from a beautiful little girl at the hospital, Alyssa!!
Thanks for all the comments, it seems the Blog site is a hit with all, especially those interstate and overseas.
Lots of love

HOME AT LAST!

Mia came home from hospital yesterday. She has been a bit unsettled overnight, but more because we bought her home with a cold which is making her very sniffly!

I is great to be back at home. She is still being fed through the tube, only taking a small amount from the bottle. All this really means is that I get no sleep!! It still takes her about an hour per feed, every three hours.

Will blogg later to let you all know how she goes!

Hi all,
Still in hospital i'm afraid! Mia went a bit backward on the weekend, started vomiting again. They reduced her feeds and today we had a test to see if she had any problems with her stomach or intestines. Everything looked okay, just showed some reflux.

We will try to delay her feeds again tomorrow (she is currently on 2 hourly feeds) and try to get her sucking on a bottle again. I think the doctors are planning on starting some reflux medication also.

Sory I havn't blogged for a few days again, its hard to find the time. In general, no news would be good news.

Speak soon, too afraid to say when we might go home in case we don't again!!!

Hi All,
Sorry I havn't blogger for a while, but have put on 3 photos to make up for it! The nurse holding Mia is Res, who has looked after her a fair bit on the ward. She is very ggod to turn up to work each day considering the hard time she is given by Richard! We love you Res!

Mia is doing well. She hasn't put on any weight today, but 50 grams over the last 2 days. We are here just for feeding now and the doctors have even taken Mia off her heart monitoring. It is great to be able to walk around the ward more freely with her now.

I am crossing my fingers to be home by the end of the week.

Cheers

HI all,

Little Mia is once again moving in the right direction. Despite a temperature last night and bloods needing to be taken, she is less jaundiced and her blood results show improving liver function tests. Her poo has gone yellow again!!!!!! Yay!!! Which means she is on the mend.

Lots more beautiful smiles today and only the occasional vomit. They are changing her feeds back to normal breast milk or S26 without the extra calories added as she is putting on weight, and tomorrow hopefully off the continuous pump feeding on to hourly feeds.

Will blogg tomorrow and let all know how things are going.

HAPPY BIRTHDAY KATY! THANKS FOR HAVING BREAKFAST WITH US A MCDONALDS!