Mia had a bad night tuesday night. Although all seemed well when we left ICU she then developed some bleeding from the gut which was unexpected for us. In fact we have been told that it is quite common for heart babies and is due to lack of oxygen to the bowel because the body thinks it is more important to have blood in other places like the heart and brain. There is a possibility that the bleeding may be due to something called NEC (necrotising Enterocolitis) and jusy incase she has been put on very strong antibiotics for 7 days and is not allowed to eat. SHe is being fed directly through her veins so her stomach and gut can rest.
While we were investigating this she stopped breathing and needed some gentle heart massage for about a minute. She really gave us a scare.
Yesterday however, her 'numbers' are much better and she is once again moving in the right direction, although very slowly. They have once again reduced the amount of muscle relaxants and she is opening her eyes and moving her little arms around. She even tried to pull out one of her tubes!!! (not deliberately ofcourse)
SHe is looking much better, not so puffy as her kidneys have kicked back in and this helps her lose the extra fluid that builds up because of the heart. For now they are happy that they do not need to re-operate although the hole they were concerned about is still a bit too small.
Hope people can understand all of this, feel free to email questions and we will endeavour to get back to you.
Cheers
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